Red Blood Cell Disorder Day

9:00-9:10 – Welcome

Morning session 1: research in sickle cell disease physiopathology

9:20-9:50    RBC aging leads to altered biomechanical properties and loss of proteostasis, Madeleine Casimir, HUB-Erasme (ULB)
9:50-10:20    Prospective Study of Biomarkers in SCD, Bushra Zucca, HUB-HUDERF (ULB)
10:20-10:50 Unmasking cardiac rythmic disorders in SCA : a first step to prevent stroke and sudden death, T. d’Humières Henri Mondor, Creteil, Fr

10:50-11:10 Coffee break

Morning session 2: red blood cell disorders (other than sickle cell)

11:10-11:30   Thalassemia in Laos a genetic epidemy, Pierre Zachee, Rode kruis Vlaanderen
11:30-11:50  Specificity of transfusion dependent thalassemic children: experience at HUDERF, Laurence Dedeken HUB-HUDERF (ULB)
11:50-12:10  Update on the Iron metabolism, Fleur Wolff, LHUB (ULB)
12:10-12:30 The role of red blood cell variants on the Plasmodium falciparum sexual conversion into gametocytes,Yasmina Drissi El Boukili, ITG, Antwerpen

12:30-14:00 Lunch break

Afternoon session 1: Treatment in sickle cell disease

14:00-14:20 Determining the value of longstanding and novel treatments for sickle cell disease through a multi-national multi-criteria decision analysis (MCDA), Kadidja Abdallah, KUL
14:20 -14:40 Osteonecrosis in sickle cell patients, Simon  Koulisher, CHU St Pierre (ULB)
14:40-15:00 E-learning in sickle cell disease for nursing staff, Jean-Francois Laliève, HUB-Erasme (ULB)
15:15-15:30 Extra oral fluids versus IV fluid therapy during vaso-occlusive crisis in sickle cell disease; a multicenter, randomized open label study (REPLACE Study), Sanjay Thakoerdin, Amsterdam UMC, NDL

15:30-16:00 – coffee break

Afternoon session 2:  Patient oriented talks:

16:00-16:20  Update of the Belgian sickle cell registry, Sarah Wambacq, HUB-HUDERF( ULB)
16:20-16:40 The effect of music and dance therapy on the health status of people with sickle cell disease, Ann Van De Velde, UZA
16:40-17:00 Use of consumer wearables to predict pain in patients with sickle cell disease, Caroline Vuong Amsterdam UMC, NDL
17:00-17:20 New treatments in sickle cell disease, Martin Collard, HUB-Erasme (ULB)